People are people first
Ryn asks, "What should professionals know about disability?" (In my answer, I am discussing mostly medical professionals and others who have PWDs as a major part of their work load.)They should know...
View ArticleResponse to "Necessities"
http://ballastexistenz.autistics.org/?p=477Once again, Amanda has managed to capture so many of my past thoughts and write them down in a convincing, comprehensive way.Over the years, I have been...
View ArticleThrough the Mountains and the Valleys
Who defines my identity? I've realized the answer is very simple: only I can. It took a while to get there, unfortunately.The world would have you believe I'm a woman with unrealized potential, cut off...
View ArticleAnd Now, For Something Completely Different...
Speaking of a video game the other night, my sister said, "The background music is beautiful if you can hear it through the violence." That sentence has rolled around my brain for almost a full day...
View ArticleImpairment and Spirituality
Disclaimer: Normally I'm not much of a preacher, unless someone asks. Ryn asked :P I also apologize if it is excessively rambling.Before I am anything else, I am a disciple of Christ. When I lost my...
View ArticleClik here to view.
Those Days When Your Ramp Becomes a Boat
This beautiful piece of art was made for me by my sister. It is the first part of a series portraying the innocence of the interactions between children and disability.[Description: A child squats on a...
View ArticleWain!
Ceelie had an encounter with rain today. We've hustled through it before, and gone out with her dad under the awning, but this was a little different. She just sat in my lap, no shoes on, with a light...
View ArticleWaving Across the River
I find it odd that I don't remember how Irene and I became friends. On the surface, we don't have much in common. She was more than fifty years older than me, truly a Senior Saint. I am overloud, a bit...
View ArticleA Long, Cold Winter
We often picture life in seasons, and rightly so. Just as nature has its spring and summer, fall and winter, each preparing for the next and leading organically into them, so do we. There are seasons...
View ArticleXena, Warrior Princess
I just finished watching the full show in order, thanks to Netflix and still being stuck in bed until I get a powerchair. It was surprisingly gratifying on a number of levels. There is an underlying...
View ArticleDistilling the Cry of my Heart
As my disease progression has gone bulbar, I am losing my ability to speak. It started with my ability to sing, and now if I talk too much or too loudly I wear out my voice very quickly. It is a...
View ArticleWhat is your cage doing to you?
http://www.eurekalert.org/pub_releases/2010-07/uocd-rfm071610.phpThe person who posted this to the Motor Neuron Disease boards followed the link with this quote:"It doesn't only affect us."I am...
View ArticleDisability Questions
I got these from Emma, who answered them very well. They seemed like an excellent place to start this blog.1) If you could re-live your life without having your disability, would you?This one is...
View ArticleBook Review: The Time Traveler's Wife
I picked up "The Time Traveler's Wife" by Audrey Niffenegger on a whim, having read the book jacket a few weeks earlier. The description sounded vaguely interesting at the time, and the author's last...
View ArticleThe Beauty of Mush
I love music.This may seem a simplistic and obvious statement, but in my life it is not. I am not deaf/Deaf. I can hear at almost normal volumes - 80% in one ear, 85% in the other. However, once that...
View ArticleBook Review: The Speed of Dark
While moseying through the SciFi/Fantasy section of the local Border's recently, one particular book caught my eye. It was "The Speed of Dark" by Elizabeth Moon. I was delighted to discover an...
View ArticleDealing with Family, Old and New
Access means getting to a place where everybody else gets to, so you don't have to make special calls to warn them of your arrival.-Itzhak PerlmanThis past sunday, I had two family events to attend....
View ArticleDisability Blog Carnival on April 12th
I am hosting the April 12th edition of the disability blog carnival.The topic is "Disability and Culture".
View ArticleCarnival #12
I'd like to welcome you to the 12th edition of the Disability Blog Carnival. Thank you for coming! I hope that the many excellent submissions we have in this edition inspire as much thought in our...
View ArticleUniversal Design... not!
Its 2007, and there is still disablism, in case anyone was confused on that point. ;) This is my entry for the second annual Blogging Against Disablism Day. The first one was my main vehicle into...
View ArticleOops?
Last night, I made a serious faux pass: I forgot to consider audience I was talking to, and in doing so pretty much ended the whole conversation. I had gotten so comfortable talking online to other...
View ArticleReflections on a Weekend
I'd like to state at the beginning, I'm not sure where this post is going. I feel a need to write it though, so I guess I'll find out. You're welcome to come along for the ride with me.I had a pretty...
View ArticleWedded in a Wheelchair
I wrote more generally about my and my sis's double wedding in my other blog, link at the bottom right.That said, lets dig into the wheelie bits!In planning the wedding, it was important to me that my...
View ArticleA Yet Untitled Poem
Too many people, even people I like, speak of birth defects casuallyThey speak of screening followed by "prevention" without thought or remorseThey consider less births with deformities positive...
View Article
